Experience of People in Mild and Moderate Stages of Alzheimer’s Disease in Spain

Jorge Riquelme-Galindo; Sofía García-Sanjuán; Manuel Lillo-Crespo; Maria Antonia Martorell-Poveda

doi:10.5294/aqui.2020.20.4.4

Autores/as

Jorge Riquelme-Galindo Autor/a Universidad de Alicante http://orcid.org/0000-0002-6010-208X
Sofía García-Sanjuán Autor/a Universidad de Alicante http://orcid.org/0000-0003-2053-2808
Manuel Lillo-Crespo Autor/a Universidad de Alicante http://orcid.org/0000-0003-2053-2808
Maria Antonia Martorell-Poveda Autor/a Universitat Rovira i Virgili http://orcid.org/0000-0002-0309-1812

DOI:

https://doi.org/10.5294/aqui.2020.20.4.4

Palabras clave:

Demencia, enfermedad de alzheimer, investigación cualitativa, acontecimientos que cambian la vida, entrevistas.

Resumen

Experiencia de personas con Alzheimer en fases leves y moderadas en España

A experiência de pessoas com Alzheimer na Espanha nas fases leve e moderada

Objetivo: analizar el significado que adquiere la enfermedad para las personas afectadas por Demencia, proporcionándoles voz.

Material y métodos: aproximación a la fenomenología descriptiva a través de entrevistas a personas de ambos sexos y mayores de 50 años residentes en Tarragona (España) con un diagnóstico de Demencia leve o moderada, principalmente enfermedad tipo Alzheimer.

Resultados: surgieron tres grandes temáticas: 1) normalización de la pérdida de memoria en fases incipientes en relación al proceso natural de envejecimiento; 2) autopercepción de que existe un problema de memoria instaurándose que se disimula frente a su entorno y 3) procesos de adaptación y aprendizaje de estrategias para convivir con su condición tras el diagnóstico.

Conclusiones: la falta de infraestructuras especializadas dentro del sistema sanitario en materia de cuidados, programas de prevención y detección precoz son los aspectos más evidentes remarcados.

Para citar este artículo / To reference this article / Para citar este artigo

Riquelme-Galindo JR, García-Sanjuán S, Lillo-Crespo M, Martorell-Poveda MA.
Experience of People in Mild and Moderate Stages of Alzheimer's Disease in Spain Aquichan. 2020;20(4):e2044. DOI: https://doi.org/10.5294/aqui.2020.20.4.4

Recibido: 05/04/2020

Aceptado: 24/08/2020

Publicado: 04/12/2020

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