Intervention of Humanized Nursing Accompaniment and Quality of Life in People with Advanced Cancer
DOI:
https://doi.org/10.5294/aqui.2019.19.3.3Keywords:
Neoplasia, quality of life, nursing care, hospice care, interventionAbstract
Intervención de acompañamiento humanizado de enfermería y calidad de vida en personas con cáncer avanzado
Intervenção de acompanhamento humanizado de enfermagem e calidad de vida em pessoas con cáncer avançado
Objective: To assess the effect of an intervention of humanized nursing accompaniment, at home, on the quality of life of people with advanced cancer and of their family caregivers. Method: Pre-experimental study with pre- and post-intervention measurements. The intervention included home visits, internet platform, and telephone contact for three months. The sample was comprised of 17 patient-caregiver dyads. The data analysis was descriptive and correlational. Results: The study obtained a large magnitude of the effect of the intervention, in the global health of the person with cancer, with highly significant differences between the pre- and post-intervention, besides the decrease of symptoms, like fatigue and dyspnea. In the caregivers, there was moderate magnitude of the effect of the intervention on quality of life, in the settings of social relationships and environment, with highly significant differences between the pre- and post-intervention. Conclusion: A humanized nursing care intervention, which reinforces and reaffirms the social, affective, spiritual, and communication areas in the patient-family caregiver dyad, increases the quality of life of people with advanced cancer and that of their caregivers.
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Hermisilla-Ávila AE, Sanhueza-Alvarado OI. Intervention of Humanized Nursing Accompaniment and Quality of Life in People with Advanced Cancer. Aquichan 2019; 19(3): e1933. DOI: https://doi.org/10.5294/aqui.2019.19.3.3
Received: 15/02/2019
Accepted: 12/06/2019
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References
World Health Organization. Cancer. Descried note nº297. WHO [Internet]. 2018. [Cited 2019 Jan. 4]. Available in: http://www.who.int/cancer/palliative/
Chilean Ministry of Health. Department of Health Statistics and Information. Government of Chile [Internet]. 2019. [Cited 2019 Jan. 4]. Available in: http://www.deis.cl
Cid C, Herrera C, Rodríguez R, Bastías G, Jiménez J. Assessing the economic impact of cancer in Chile: a direct and indirect cost measurement based on 2009 registries. Medwave [Internet]. 2016;16(7):e6509 [Cited 2019 Jan. 4]. DOI: https://doi.org/10.5867/medwave.2016.07.6509
World Health Organization. Pain. WHO [Internet]. 2018. [Cited 2019 Jan. 4]. Available in: https://www.cancer.gov/espanol/cancer/tratamiento/efectos-secundarios/dolor/dolor-pro-pdq#cit/section_1.8
World Health Organization. Palliative Care. WHO [Internet]. 2018. [Cited 2019 Jan. 4]. Available in: http://www.who.int/cancer/palliative/es/
Morales A, Cavada G, Miranda J, Ahumada M, Derio L. Eficacia del Programa Alivio del Dolor por Cáncer Avanzado y Cuidados Paliativos de Chile. Revista El Dolor [Internet]. 2013; 22 (59): 18-25. Available in: https://www.ached.cl/canal_cientifico/revista_eldolor_detalle2.php?id=181
Ministerio de Salud de Chile. Guía de Práctica Clínica Alivio del Dolor por Cáncer Avanzado y Cuidados Paliativos 2017. MINSAL [Internet]. 2017. [Cited 2019 Jan. 4]. Available in: https://diprece.minsal.cl/wrdprss_minsal/wp-content/uploads/2018/02/Resumen-ejecutivo_Alivio-del-Dolor_2017.pdf
Portela P, Gómez F. Advanced prostate cancer and quality of life. Arch Esp de Urología [Internet]. 2018;71(3):306-314. Available in: https://aeurologia.com/article_detail.php?aid=7f1dc2e81a2445ffe92fb30f0794cf1b8f23e0b8
Bryant-Lukosius D, Valaitis R, Martin-Misener R, Donald F, Peña L, Brousseau L. Advanced Practice Nursing: A Strategy for Achieving Universal Health Coverage and Universal Access to Health. Rev. Latino-Am. Enfermagem [Internet]. 2017; 25:e2826. [Cited 2019 Jan. 4]. DOI: http://dx.doi.org/10.1590/1518-8345.1677.2826
Fernández-Isla L, Conde-Valvis F, Fernández-Ruiz J. Grado de satisfacción de los cuidadores principales de pacientes seguidos por los equipos de cuidados paliativos. Semergen. 2016,42(7):476-481. DOI: https://doi.org/10.1016/j.semerg.2016.02.011
Segura I, Barrera L. A call to nursing to respond to the health care of people with chronic illness due to their impact on their quality of life. Salud Uninorte [Internet]. 2016;32(2):228-243. Available in: http://www.scielo.org.co/scielo.php?script=sci_abstract&pid=S0120-55522016000200006
Velasco J. Grijalva M, Pedraza A. Repercusiones del cuidar en las necesidades básicas del cuidador primario de pacientes crónicos y terminales. Med Paliat. 2015; 22(4): 146-151. DOI: https://doi.org/10.1016/j.medipa.2015.01.001
Olivé C, Isla M. The Watson model for a paradigm shift in care. Rev ROL Enferm [Internet]. 2015;38(2):123-128. Available in: http://www.e-rol.es/articulospub/articulospub_paso3.php?articulospubrevista=38(02)&itemrevista=123-128
Watson J. Love and caring. Ethics of face and hand--an invitation to return to the heart and soul of nursing and our deep humanity. Nurs Adm Q. 2003; 197-202. Available in: https://journals.lww.com/naqjournal/Fulltext/2003/07000/Love_and_Caring__Ethics_of_Face_and_Hand_An.5.aspx
Watson J. Watson’s theory of human caring and subjective living experiences: curative factors/caritas processes as a disciplinary guide to the professional nursing practice [Internet]. The United States, Denver: 2006 [Cited 2019 Jan. 4]. Available in: http://www.scielo.br/pdf/tce/v16n1/a16v16n1.pdf
Ezekiel E. Siete requisitos éticos. ¿Qué hace que la investigación clínica sea ética? Siete requisitos éticos. Pautas Éticas de Investigación en Sujetos Humanos: Nuevas Perspectivas. Organización Mundial de la Salud. 2003: 83-95.
Skevington SM, Lofty M, O Connell KA. The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res [Internet]. 2004; 13(2): 299-310. DOI: https://doi.org/10.1023/B:QURE.0000018486.91360.00
Espinoza I, Osorio P, Torrejón M, Lucas-Carrasco R, Bunout D. Validación del cuestionario de calidad de vida (WHOQOL-BREF) en adultos mayores. Rev Med Chile. 2011; 139: 579-586. DOI: http://dx.doi.org/10.4067/S0034-98872011000500003
Moncho J. Statistics applied to health sciences. Advanced Health Care Collection. 8 ed. Barcelona: Elsevier; 2015.
Bethancourt Y, Bethancourt J, Moreno Y, Suárez A. Evaluation of psychological well-being in primary caregivers of cancer patients in the palliative care phase. Mediciego [Internet]. 2014; 20 (2): 7 screens [Cited 2019 Jan. 4]. Available in: http://www.medigraphic.com/pdfs/mediciego/mdc-2014/mdc142f.pdf
Alfaro-LeFevre R. Application of the nursing process: fundamentals of clinical reasoning. 8 ed. Wolters Kluwer; 2014.
Granados G. Application of psychosocial sciences to the field of caring. Barcelona: Elsevier; 2014.
Santana J, Pessini L, Sá A. Desires of terminally ill patients: a bioethical reflection. Rev Enfermagem. [Internet]. 2015; 18(1):2850 [Cited 2019 Jan. 4]. Available in: http://200.229.32.55/index.php/enfermagemrevista/article/view/9367
Beltrán-Salazar Ó. Attention to detail, a requirement for humanized care. Index Enferm [Internet]. 2015;24(1-2): 49-53 [Cited 2019 Jan. 4]. DOI: http://dx.doi.org/10.4321/S1132-12962015000100011
Velasco J. Grijalva M, Pedraza A. Repercusiones del cuidar en las necesidades básicas del cuidador primario de pacientes crónicos y terminales. Medicina Paliativa [Internet]. 2015; 22(4): 146-151. DOI: http://doi.org/10.1016/j.medipa.2015.01.001
Salazar-Montes AM, Murcia-Paredes LM, Solano-Pérez JA. Evaluación e intervención de la sobrecarga del cuidador informal de adultos mayores dependientes: Revisión de artículos publicados entre 1997-2014. Arch Med (Manizales) [Internet]. 2016; 16(1):144-54. Available in: http://revistasum.umanizales.edu.co/ojs/index.php/archivosmedicina/article/view/813
Puerto H. Quality of life in family caregivers of people undergoing cancer treatment. Rev. Cuid [Internet]. 2015; 6(2):1029-40 [Cited 2019 Jan. 4]. DOI: http://dx.doi.org/10.15649/cuidarte.v6i2.154
Walshe C, Roberts D, Appleton L, Calman L, Large P, Lloyd.Williams M, Grande G. Coping well with advanced cancer: a serial qualitative interview study with patients and family carers. Plos One [Internet]. 2017;12(1):e0169071 [Cited 2019 Jan. 4]. DOI: https://doi.org/10.1371/journal.pone.0169071
Chilean Ministry of Health. Department of Non-Communicable Diseases, Cancer Unit. Technical Report 2009 National Program Pain Relief and Palliative Care. Ciudad: MINSAL;2009. [Cited 2019 Jan. 4]. Available in: http://www.redcronicas.cl/index.php?option=com_docman&task=cat_view&gid=38&Itemid=234.
Zurita J. Cuidados paliativos tempranos para adultos con cáncer avanzado. Rev Conamed [Internet]. 2017;22(4): 195-196. Available in: https://www.medigraphic.com/pdfs/conamed/con-2017/con174i.pdf
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