Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review
DOI:
https://doi.org/10.5294/aqui.2020.20.2.8Keywords:
Autism Spectrum Disorder, access to information, family, child, social support.Abstract
Información necesaria para las familias de niños con desorden del espectro autista: una revisión integradora
Informações necessárias às famílias de crianças com transtorno do espectro autista: uma revisão integrativa
Objective: To identify the available evidence on the necessary information for the families of children with Autism Spectrum Disorder (ASD).
Method: An integrative literature review carried out in six databases with specific descriptors for each one. Studies published on the theme between January 2014 and February 2020 available in full and free of charge were selected. For synthesis and analysis of data, thematic categorization was performed. 41 articles were included.
Results: Two thematic categories were obtained. In the first category (“need for information”), the families’ lack of knowledge about ASD (treatment, how to deal with the child’s behavior, and future perspectives), rights of the child with ASD, and resources to obtain information were identified. The second category (“information support sources accessed by the families”) comprised informal sources (family members, friends, neighbors, and parents of children with ASD), formal sources (professionals and institutions), the Internet, and other resources (books, workshops, podcasts). Positive and negative aspects were found in the use of these sources.
Conclusions: A pattern of information requested by the family was verified, as well as sources used to obtain it. These data are relevant to support the organization of sources of informational support for the families and the community.
Para citar este artículo / To reference this article / Para citar este artigo
Weissheimer G, Santana JM, Ruthes VBTNM, Mazza VA. Necessary Information for the Families of Children with Autism Spectrum Disorder: An Integrative Review. Aquichan. 2020;20(2):e2028. DOI: https://doi.org/10.5294/aqui.2020.20.2.8
Recibido: 23/03/2020
Aceptado: 09/06/2020
Publicado: 13/07/2020
Financiación: This article was funded by the National Council for Scientific and Technological Development, Ministry of Technology, Science and Information, with funds obtained by the Universal Project, approved by MCTI/CNPq 1/2016. It is also derived from the first developmental stage of the doctoral thesis entitled “Informational support for the families of children with autism: Content validation”, defended at the Federal University of Paraná, Brazil.
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