Developing a Nursing Assessment Chart for Patients Receiving Palliative Care at Home: A Delphi Method Study

Authors

DOI:

https://doi.org/10.5294/aqui.2026.26.2.4

Keywords:

Palliative care, home health nursing, nursing assessment, Delphi method, expert consensus, terminal care

Abstract

Introduction: As the demand for home-based palliative care continues to grow, nurses play a critical role in assessing and managing the multifaceted needs of terminally ill patients. Despite international guidelines emphasizing comprehensive nursing assessment, a significant gap remains in structured tools tailored specifically for use in the home setting. Objective: To develop and validate a structured nursing assessment chart for patients receiving home-based palliative care using expert consensus through the Delphi method. Methods: A literature review was conducted to identify key nursing indicators relevant to home-based palliative care. A preliminary assessment chart was developed, encompassing seven core domains—vital signs, general examination, patient concerns, pain and symptom evaluation, functional status, pressure injury risk, and self-assessed quality of life. A panel of 21 experts (12 oncologists and 9 community nurses) participated in two Delphi rounds to evaluate the relevance and clarity of each item. Items were rated on a 5-point Likert scale, and consensus was defined as ≥75% agreement. Results: Consensus was achieved for most items during the first round (range: 85.5%-98.5%), with the exception of “Vital Signs Assessment” (74.4%) and “Self-Assessment of Quality of Life” (65.6%). After revisions, these two items reached 91.5% and 89.1% consensus, respectively, in the second round. Feedback from the panel led to several refinements, including the addition of oxygen saturation, spiritual needs, and expanded symptom categories. Conclusion: The Delphi process enabled the development of a validated, evidence-informed nursing assessment chart suitable for home-based palliative care. This tool addresses a previously unmet need by offering a structured approach to evaluating the clinical and psychosocial status of terminally ill patients in the community. It supports consistent nursing documentation, interdisciplinary communication, and person-centered care planning.

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References

Anita A, Septian RB, Ghozali L. Nurses' roles and challenges in interprofessional home-based palliative care: A systematic review of qualitative studies. Am J Hosp Palliat Care. Published online August 22, 2025. DOI: https://doi.org/10.1177/10499091251371145

Murali, K. P., Ma, C., Harrison, K. L., Hunt, L. J., Rosa, W. E., & Boyden, J. Y. (2024). Palliative nursing in home health care across the lifespan. American J Nurs, 124(12), 53-59. DOI: https://doi.org/10.1097/01.NAJ.0001095240.11717.87

Karagkounis C, Connor S, Papadatou D, Bellali T. Evaluating palliative care needs in patients with advanced non‑malignant chronic conditions: an umbrella review of needs assessment tools. Healthcare. 2026;14(1):46. DOI: https://doi.org/10.3390/healthcare14010046

Tønnesen S, Nielsen MK, Neergaard MA. Instruments for assessing nurses’ palliative care knowledge and skills: A systematic review. J Clin Nurs. 2020;29(21-22):3970-82.

International Council of Nurses (ICN). Nurses: A voice to lead —A vision for future healthcare. Geneva: ICN; 2021.

Bainbridge D, Brazil K, Krueger P, Ploeg J, Taniguchi A. A proposed systems approach to the evaluation of integrated palliative care. BMC Palliat Care. 2010;9:8. DOI: https://doi.org/10.1186/1472-684X-9-8

World Health Organization (WHO). Palliative care. 2018. Available from: https://www.who.int/news-room/fact-sheets/detail/palliative-care

European Association for Palliative Care (EAPC). EAPC Atlas of Palliative Care in Europe 2019. Vilvoorde: EAPC; 2019.

Dalkey N, Helmer O. An experimental application of the Delphi method to the use of experts. Manag Sci. 1963;9:458-67. DOI: https://doi.org/10.1287/mnsc.9.3.458

He X, Liu M, Zhang C, Li H, Wang Y, et al. Development of care quality indicators for palliative care in China: A modified Delphi method study. Asia Pac J Oncol Nurs. 2023;10(12):100324. DOI: https://doi.org/10.1016/j.apjon.2023.100324

Lee S, Kim J, Park H. Development of an end-of-life nursing care protocol for intensive care units using the Delphi method. Int J Nurs Stud. 2022;127:104179. DOI: https://doi.org/10.1097/NJH.0000000000000872

Leemans, K., Cohen, J., Francke, A.L. et al. Towards a standardized method of developing quality indicators for palliative care: protocol of the Quality indicators for Palliative Care (Q-PAC) study. BMC Palliat Care. 2013;12,6. DOI: https://doi.org/10.1186/1472-684X-12-6

De Wolf-Linder S, Reisinger M, Gohles E, et al. Are nurses’ needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review. BMC Nurs. 2022;21:194. DOI: https://doi.org/10.1186/s12912-022-00947-6

Humphrey-Murto S, Wood TJ, Gonsalves C, Mascioli K, Varpio L. The Delphi Method. Acad Med. 2020;95(1):168. DOI: https://doi.org/10.1097/ACM.0000000000002887

Niederberger M, Spranger J. Delphi technique in health sciences: A map. Front Public Health. 2020;8:457. DOI: https://doi.org/10.3389/fpubh.2020.00457

Schifano, J., Niederberger, M. How Delphi studies in the health sciences find consensus: A scoping review. Syst Rev 14, 14 (2025). DOI: https://doi.org/10.1186/s13643-024-02738-3

Aslakson R, Dy SM, Wilson RF, et al. Assessment Tools for Palliative Care. Rockville (MD): Agency for Healthcare Research and Quality (US); May 2017.

de Wolf-Linder, S., Reisinger, M., Gohles, E. et al. Are nurse’s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review. BMC Nurs 21, 194 (2022). DOI: https://doi.org/10.1186/s12912-022-00947-6

Wilkinson JM. Nursing Process and Critical Thinking. 5th ed. Boston: Pearson; 2016. Available from: https://www.pearson.com/store/p/nursing-process-and-critical-thinking/P100000607886

World Health Organization. Integrating palliative care and symptom relief into primary health care: A WHO guide for planners, implementers and managers. Geneva: WHO; 2018. Available from: https://apps.who.int/iris/handle/10665/274559

Masharipova A, Nurgaliyeva N, Derbissalina G. Nurses’ level of preparedness to provide palliative care and its relationship with their evidence-based practice. J Client Cent Nurs Care. 2024;10(2):135-46. DOI: https://doi.org/10.32598/JCCNC.10.2.519

Alfaro-LeFevre R. Applying Nursing Process: A Tool for Critical Thinking. 9th ed. Philadelphia: Wolters Kluwer Health; 2020.

Masharipova AV, Derbissalina GA, Zhunussova DK, Nagashybek G, Amangeldiyeva D. Experience in using the service design in the development of nursing services in the Republic of Kazakhstan. New Armen Med J. 2022;16(3):43-8. DOI: https://doi.org/10.56936/18290825-2022.16.3-43

Basch E, Deal AM, Kris MG, et al. Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial. J Clin Oncol. 2016;34(6):557-565. DOI: https://doi.org/10.1200/JCO.2015.63.0830

O’Hagan S, Manias E, Elder C, Pill J, Woodward-Kron R, McNamara T, et al. What counts as effective communication in nursing? Evidence from nurse educators and clinicians’ feedback on nurse interactions with simulated patients. J Adv Nurs. 2014;70(6):1344-55. DOI: https://doi.org/10.1111/jan.12296

Dudgeon D. The impact of measuring patient-reported outcome measures on quality of and access to palliative care. J Palliat Med. 2018;21(S1):S76-S80. DOI: https://doi.org/10.1089/jpm.2017.0447

Müller E, Mayer Steinacker R, Gencer D, Keßler J, Alt Epping B, Schönsteiner S, et al. Feasibility, use and benefits of patient-reported outcome measures in palliative care units: a multicentre observational study. BMC Palliat Care. 2023;22:45. DOI: https://doi.org/10.1186/s12904-022-01123-y

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Published

2026-08-20

How to Cite

Gulmira, D., Masharipova, A., Nassikhat, N., & Elmira, K. (2026). Developing a Nursing Assessment Chart for Patients Receiving Palliative Care at Home: A Delphi Method Study. Aquichan, 26(2), e2624. https://doi.org/10.5294/aqui.2026.26.2.4

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